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Overcoming Guillain-Barre Syndrome

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Cooking breakfast is a simple task. but to Beth Devries, it's much more.  "I coudln't even hold the egg, let alone crack it."

Beth survived two episodes of recurrent Guillain-Barre syndrome.  Symptoms started in her feet.  "I couldn't feel the floor," she said.  Numbness and weakness progressed quickly throughout her body.  "I walked into the kitchen and i fell on the floor flat on my face and I couldn't get up. I couldn't move."

Beth ended up in the intensive care unit.  "I said goodbye to my parents three times because I didn't think I was going to make it through the night."

Father and son team of doctor's Peter and James Dyck study Guillain-Barre syndrome and related illnesses. they say the disease usually happens after a viral infection.  "Your immune system gets confused. so instead of attacking the virus, it attacks your nerves. and usually what happens is it causes demyelination.  Myelin is insulation around nerve fibers," says James. 

To Beth cooking it helps nerves conduct signals. If your immune system attacks nerves, the insulation breaks down. Nerves don't conduct as fast as normal, or they don't conduct at all. muscles become weak or simply don't work.

Guillain-Barre is very scary, but most people, like Beth, do recover. Treatment invovles what's called Plasmapheresis, during which blood is "washed" and returned to the body. patients may also have infusions of immunoglobulin. Both prevent the immune system from attacking nerves. after more than a year in the hospital and many months of recovery, Beth is almost back to normal.

If you'd like to learn more, visit the Mayo Clinic.


gbs

i came down with gbs in feb 2009 it is very frightening i started with pains in my chest and then i started to get the numbness in my toes working up ,and very weak i was at the doctors 3 times before i was admited to hospital who discharged me who put it down to post traumatic stress, the next morning i went into the bath and coildnt get out which was very scary as i live on my own, i went back to the docs by this time i ciould barely walk and one side of my face had dropped they then thought it was bells palsy i was again admited to hospital again where the pains in my chest was unbearable the next night i was sent to itu where it took over a week before i was diagnosed with gbs i was then transfered to james cook university hospital wher i can not thank the staff enough they looked after me brilliantly by then i was unable to see properly i couldnt use my arms or legs and had to have a catheter fitted , i am thankfully back to myself but it was very scary and wouldnt wish anybody to go through it


So sorry to hear about this

So sorry to hear about this ordeal for you. I'm trying to research GBS as I'm having pains in my chest also. I've read that GBS usually starts in the legs, but as you, I think mine may have started in the chest. My right rib area fills like I lifted weights and that I tore a muscle. If I move quickly with either arm, the pain is horrific and once I do this, the arm (whichever one I moved fast) is limp for 1-2 hours. I had an MRI yesterday and I'm waiting for results, however, I'm not sure that will show anything with GBS. Laying down or getting back up out of bed is an ordeal and usually results in me cursing up a storm for 1/2 hour or so. Sometimes even just a slight move of my neck, a twist of my lower back, or a seemingly simple motion will send me through the roof. I'd be very interested to see if your initial symptoms were similar to these.
Thanks....


GBS/CIDP Foundation

http://www.gbs-cidp.org/
This is a great resource for those who have had GBS and their family members. There may be a chapter set up near you.


Gullian-Barre

I had my own personal battle with GBS starting on Dec 7, 2005. I was totaly paralyzied with the exception of my left wrist and my eye lids. I spent 2 months in ICU and then 1 Month in Siskin Rehab Hospital and another 2 months in Siskin Day Hospital. I have almost fully recovered with the exception of very bad neuropathy from my knees down and my feet are still numb. But I can't imagine going through it twice like this lady has done. My thoughts and prayers to her and anyone else who has gone through this thing. It is a total life changer.


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